Louis Del Re wins 2025 ALS TDI Leadership Award

Written By ALS Superfund

The ALS Therapy Development Institute (ALS TDI) Leadership Awards are presented to people who have been nominated by our community in recognition of their exemplary leadership in the fight against ALS.  

ALS TDI is proud to announce the 2025 Leadership Award recipients: Will and Lincoln Bennett, Louis Del Re, Gary & Carol Godfrey, Katie DeGregorio Silvestri, Mindy Uhrlaub, Timm Fenton, Janie Gobeli, and Lynn Brielmaier. We are thrilled to share that many of the honorees will be present at this year’s ALS TDI Summit and White Coat Affair Gala.

You can read the descriptions of the awards and see the past award winners here. 

Augie Nieto Legacy Award - New in 2025!

Louis Del Re 

Louis Del Re is a shining example of true leadership and collaboration in raising awareness and funds to accelerate research for a cure for ALS. Since his diagnosis at the age of 30 in June 2023, he has lived by the mantra ‘Keep On Buzzin’—a reminder to stay motivated, embrace joy, practice gratitude, and keep fighting. Louis, a Toronto, Canada native, joined the Board of Directors of ALS Action Canada. After learning about ALS TDI’s Ales for ALS program, Louis proposed an idea– let’s combine forces and establish a partnership between Ales for ALS and the ALS Superfund to create a more impactful and scalable way to spread the initiative across Canada. In just a few short months, the partnership was in place and Louis personally recruited 8 brewers in Ontario. Louis consistently communicates that the ALS community is stronger when working together, no matter where we are. When it comes to ending ALS, we are all on the same team. 

 Louis uses his social media platforms and speaking opportunities to educate others on what it’s like living with ALS and amplifies the patient and caregiver voices of others. Louis shares his personal story and challenges in authentic and vulnerable ways that are a testament to his strength and values. It is not only what Louis has helped achieve in terms of building partnerships, raising awareness, and driving forward common goals to end ALS, it’s how he’s done it. His inclusivity, collaboration, kindness, humor, humility, and incredible wisdom touch every person he meets. Louis sets a truly outstanding example of how influential and impactful any one person can be for a cause.  

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E-news September 2025