The people

New LEadership

Meet Mark Kirton

Mark Kirton (1958–2025), who lived courageously with ALS since 2018 and served as a dedicated board member of ALS Action Canada, was a driving force in national awareness and advocacy. Even as he faced the challenges of ALS, his leadership inspired the NHL community and countless supporters—including Wayne Gretzky, Darryl Sittler, Wendel Clark and others—to take action. His legacy endures through the unprecedented partnership of all 32 NHL teams united to fight ALS and fund vital research.

Leigh Naturkach Appointed as New Executive Director of ALS Action Canada

Leigh Naturkach is a values-based non-profit leader and consultant, with over twenty-five years experience in charitable, social justice, health and gender equity sectors and grassroots movements.

Previous to joining ALS Action Canada as Executive Director, Leigh was the Executive Director at the Mosaic Institute for Harnessing Diversity, a national charity focused on education, dialogue, training and research to reduce prejudice and advance social cohesion. Her consultant practice has served clients such as the Royal Ontario Museum, and numerous small non-profits in strategy, development, and inclusive practices.

She has held multiple leadership roles in health advocacy and equity organizations, including Women’s College Hospital Foundation, driving millions to advance healthcare equity and innovation, as well as fundraising for AIDS Committee of Toronto, supporting and empowering people living with, at risk for and affected by HIV.

During her tenure at Canadian Women’s Foundation, Leigh led the Women Moving Women campaign, raising $6.25 million to fuel economic development programs for women facing economic and social barriers. She also raised funds for girls leadership and violence prevention programs, as well as was the manager of violence prevention and healthy teen relationship programs. 

Leigh’s volunteer experience over two decades in Board of Director roles has included serving organizations such as Dying with Dignity Canada, Canadians for Choice, and Arrabon House for at risk girls. Her frontline volunteer experience has served Hospice Toronto, Journey Home Hospice, Ernestine’s Women’s Shelter, Scarborough Women’s Centre, a number of dog rescue and foster organizations across Ontario, and many others.

Leigh has formal education and background in media and marketing, and worked for Corus Entertainment in production, programming, and marketing for nearly ten years. She has earned certification and engages in communities of practice as a death doula, in community engagement and leadership, as well as is a certified dog trainer with nearly 5,000 hours of volunteer fostering, rescue and boarding experience.

The actions and funding decisions of the ALS Super Fund are guided by members of the Advisory Council. The Advisory Council is composed of leading minds in ALS from around the world, including neurologists, researchers, clinicians, and charity representatives. When funds are disbursed to charities, the Super Fund will report results back to donors, building transparency and confidence that the ALS Super Fund is catalyzing change.

Meet the Advisory Council

Don Wright

ALS Action Canada Chairman, Senior Public Sector Executive

Don Wright (Chair)

Kevin Moorhead (Vice-Chair)

Roger Charles (Treasurer)

Darryl Borsato

Kevin Dawson

Louis Del Re

Jeff Jackson

Lisa Kirton

Adrienne Molinski

Erin Morantz

Cali Orsulak

Paul Thandi

Rick Zwiep

Dr. Colleen O’Connell

Physiatrist, Prof. Dalhousie University Faculty of Medicine, Medical Director and Research Chief at Horizon’s Stan Cassidy Centre, Fredericton, New Brunswick

Dr. Angela Genge

Neurologist/Dir. ALS Centre of Excellence for Research & Patient care at McGill University, Montréal, Québec

Dr. Lorne Zinman

Neurologist/Associate Scientist/Dir. Sunnybrook Health Sciences Centre, Toronto Ontario

Dr. David Taylor

VP of Science/Research at ALS Canada, Toronto, Ontario

Dr. Wendy Johnston

Neurologist/professor at the University of Alberta, Edmonton Alberta

Dr. Lawrence Korngut

Neurologist & Dir. of the Calgary Neuromuscular Program, Calgary Alberta

Dr. Andrew Darke

pAL, ALS Action Canada Advocacy Committee Member

Rick Zwiep

pAL, ALS Action Canada Board Director

Board of Directors

Cali Orsulak

cAL, ALS Action Canada Board Director

Dr. Merit Cudkowicz

Director of the Healey & AMG Centre for ALS, chief of neurology at Massachusetts General hospital

Advocacy Committee

Leigh Naturkach (Executive Director)

Darryl Borsato

Dr. Andrew Darke

Louis Del Re

Cali Orsulak

Don Wright

Rick Zwiep 

Dr. Ammar Al-Chalabi

Prof. of Neurology & Complex Disease Genetics at Institute of Psychiatry, Psychology & Neuroscience at King's College London England

Fundraising Committee

Leigh Naturkach (Executive Director)

Gino Del Re

Louis Del Re

Wade Hall

Kevin Moorhead

Erin Morantz

David Taylor

 

Kevin Dawson (Chair)

Roger Charles

Erin Morantz

Leigh Naturkach

Don Wright

Governance and Finance Committee

Colleen Hudson

Kim McGlade

Leigh Naturkach

Paul Thandi

Rick Zwiep

Membership Committee

Dr. Erik Pioro

ALS Society of BC Chair & Professor of ALS Research, University of British Columbia