The plan

We Need to End This Disease

ALS (Lou Gehrig’s Disease) is one of the most brutal diseases facing humanity. ALS weakens motor neurons, which stop sending signals to muscles, which causes people to weaken and waste away. Eventually, the brain loses its ability to initiate and control voluntary movements. The average life expectancy for a person diagnosed with ALS is 3-5 years, and the road is a hard one to travel.

Hope is on the Horizon

Although an ALS diagnosis has been treated as a death sentence, new treatments that can stop and even reverse progression are in development. Researchers are optimistic that these emerging treatments will make ALS a manageable illness within the next ten years. The clock is ticking for people diagnosed. We must ensure that our health system is ready to provide immediate, equitable access to all promising new therapies. Unfortunately, the Canadian health system is not yet set up to give people with ALS a fighting chance.

Here’s our solution

People with ALS need the Canadian health system to:

1

Invest in more research to better understand and manage the disease.

2

Make sure that new treatments are rapidly approved.

3

Ensure equitable access to treatments and trials for all Canadians.

These changes are not difficult, but they do require will. ALS patients have created the ALS Super Fund to inspire change.

Let’s Do It Together

ALS charities have been set up in provinces across Canada. These charities provide critical physical support to people with ALS and make some investments in research and policy change. The ALS Super Fund will work with all charities across Canada, as well as government, businesses, researchers, and Foundations, directing funds to where they are most needed. The ALS Super Fund has created an Advisory Council comprised of Canada’s top minds in ALS – to ensure that resources are provided to ALS hotspots across the country.

Join us now

The ALS Super Fund was created by ALS Action Canada, a patient-led organization founded by people determined to catalyze a movement of change. The goal of the ALS Super Fund is to create a unified solution to a common problem: ending ALS. We know the changes required to #endALS.

New to cause funds?

we’ve got you covered.

  • Cause Funds solve a core problem for many donors: they know what they care about, but they don’t know where to give to create meaningful impact. By pooling resources, wisdom, and expertise, Cause Funds offer an innovative approach to charitable giving that empowers donors to easily and confidently support the cause they care about, while laying the groundwork for system-wide change and real-world impact.

  • Charitable Impact launched Cause Funds in 2023 to provide donors with an easy way to support the causes they care about. Cause Funds are led by Cause Leaders – people with passion, expertise, and lived experience within a causal area. These leaders assemble an Advisory Council of other experts, advocates, and changemakers to co-develop a coordinated plan of action to achieve impact in the causal area.

    Once the Cause Fund raises money, funds are then directed to high-impact charities and qualified donees that are working efficiently and collaboratively to achieve impact. Progress and impact are regularly and transparently reported back to donors, building trust, confidence, and more joy with your charitable giving. 

    Not only do Cause Funds promote collaboration amongst the charitable sector, but they also provide donors the opportunity to join a community committed to change.

  • To Donors:

    • Simplicity and Confidence: Cause Funds simplify giving, allowing donors to support causes without extensive research.

    • Engagement and Impact: Donors join a community of changemakers, see the tangible impact of their contributions, and gain confidence through transparent reporting.

    To the Charitable Sector:

    • Collaboration Over Competition: Cause Funds reduce competition for donor support, promoting collaboration and resource sharing.

    • Focus on Impact: Charities can concentrate on achieving lasting change without the pressure of individual fundraising.

  • Cause Funds tackle the complexity and overwhelming options in charitable giving, providing donors with a clear pathway to support their chosen causes. By connecting donors with experts and creating a collaborative environment, Cause Funds lay the groundwork for a coordinated and effective charitable sector.

  • What sets Charitable Impact Cause Funds apart is a commitment to human-centred leadership and decision-making. Unlike other Cause Funds that might lean solely on data or disperse funds evenly among charities, we put individuals with real-life experiences at the helm. 

    Think of it as assembling a winning sports team. Instead of assigning positions at random or evenly distributing playing time, we bring in a team of seasoned coaches who’ve been on the field and understand the dynamics of the game. They strategize, motivate, and lead the team to victory.

    Similarly, Charitable Impact Cause Funds enlist individuals who understand the complexities and nuances of the issues firsthand, making them uniquely qualified to set goals, develop action plans, and allocate funds. Our Cause Funds are driven by a deep understanding of the challenges and a shared commitment to creating meaningful change.

Want to learn more about Cause Funds?

Check out the Charitable Impact’s Cause Funds Page or get in touch at causefunds@charitableimpact.com